We believe that rare patient communities, equipped to securely gather and share their data with collaborating researchers and companies around the globe, will significantly expand diversity, equity, and inclusion in research and dramatically accelerate progress across rare diseases.
RARE-X believes that by enabling rare patient communities to more easily gather, structure and securely share critical inclusive data, through a common platform, in collaboration with researchers, drug developers and clinicians anywhere in the world, we will accelerate diagnosis, disease understanding, and development of future treatments and cures across more than 10,867 rare diseases.
RARE-X is a 501(c)(3) non-profit created by leaders in the fields of patient advocacy, medical research, biopharma, and technology.
RARE- X is piloting a series of demonstration projects, partnering with rare disease communities, to apply technology proven in other large-scale public health and genomic data-sharing initiatives to support the global needs of those developing treatments and caring for rare disease patients.
RARE-X is leveraging existing technology powered by the Broad Institute of MIT and Harvard, which will support patients (in data collection, structuring and responsible sharing), clinicians (in accelerating diagnosis and improving and tracking health outcomes), researchers and biopharma (with the data they need to identify, develop and track the impact of breakthrough treatments and cures).
RARE-X is adapting proven technologies and partnering with leading experts to create a federated data analysis platform, specifically designed by rare community leaders and scaled to support the diverse and expanding needs of rare disease research, development and care, around the world and in all communities.
Mining CompanyGold, copper, Aluminum, lead, nickel, tin, zinc
The Thermo Scientific ARL X’TRA Companion represents an excellent choice for routine analysis with its advanced/Bragg-Brentano benchtop X-Ray diffractometer configuration. It incorporates cutting-edge technological elements to ensure precision, accuracy, safety, and user-friendliness.
The Avio® 550 Max is a compact, fully simultaneous ICP-OES instrument with Scott/Cross-FlowTechnology.
ATLAS is a state-of-the-art TPMS telematics gateway that allows monitoring all your sensors with a single device.
AZoMining speaks to Francois Nell at Sandvik about the importance of mining sustainability and why equipment rebuilding and upgrades play their part in reducing fuel consumption.
AZoMining speaks to Philip Gross, CEO of Snow Lake Lithium, about the development of the world's first electric lithium mine. This is a particularly important development within mining and highlights the significance of accelerating green mining across the world.
Prof. James Tour
AZoMining speaks with James Tour from Rice University about his team's exciting method that has the very real potential to recover valuable REE from three types of waste; electronic waste, coal fly ash and bauxite residue.